研究动态
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儿童癌症研究的不平等:范围界定审查。

Inequities in childhood cancer research: A scoping review.

发表日期:2024 Dec
作者: Jean Hunleth, Sarah Burack, Lindsey Kaufman, Caroline Mohrmann, Thembekile Shato, Eric Wiedenman, Janet Njelesani
来源: MEDICINE & SCIENCE IN SPORTS & EXERCISE

摘要:

了解并设计减少儿童癌症不平等项目的一个组成部分包括在研究中充分代表癌症患者,包括儿童。进行了范围界定审查,以了解癌症研究如何面向不平等,并确定谁参与了儿童定性癌症研究。系统检索确定了 119 项符合纳入标准的定性研究,其中大多数研究发生在高收入国家 (n=84)。总体而言,缺乏结构、家庭、儿童和监护人等多个层面的健康社会决定因素的数据。只有 29 项研究报告了种族和/或族裔,其中大多数主要或全部是白人儿童。六篇文章包含社会经济信息,并且大多数文章都没有关注癌症治疗的财务影响。社会人口统计数据的有限报告凸显了一个更广泛的问题,即忽视了造成不平等的关键人口统计和社会因素。
An integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify who has participated in childhood qualitative cancer research. A systematic search identified 119 qualitative studies that met inclusion criteria, with most studies taking place in high-income countries (n=84). Overall, data were lacking on social determinants of health at multiple levels-structural, household, child, and guardian. Only 29 studies reported on race and/or ethnicity, with the majority of those including predominantly or all white children. Six articles included socioeconomic information, and across most articles, attention was absent to the financial ramifications of cancer care. Limited reporting of sociodemographics highlights a broader issue of neglecting key demographics and social factors that contribute to inequities.