研究动态
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通过相机镜头了解儿童和青少年癌症幸存者及其父母的癌症幸存者经历:照片语音研究。

Understanding the Experience of Cancer Survivorship Among Pediatric and Adolescent Cancer Survivors and Their Parents Through Camera Lenses: A Photovoice Study.

发表日期:2024 Sep
作者: Cho Lee Wong, Huiyuan Li, Alex Wing Kwan Leung, Carmen Wing Han Chan, Yin Ting Cheung
来源: PHYSICAL THERAPY & REHABILITATION JOURNAL

摘要:

尽管近年来儿童癌症的相对生存率大幅提高,但对成功结果的追求往往伴随着对儿童和青少年癌症幸存者及其父母身心健康的负面影响。然而,人们对他们在癌症生存期间的经历知之甚少。本研究旨在了解儿科和青少年癌症幸存者及其父母的癌症生存经历。本研究采用了采用照片语音设计的描述性定性研究。从 2022 年 9 月到 2023 年 3 月,17 名儿童和青少年癌症幸存者(9-18 岁)参与了这项研究,他们在招募前至少 6 个月完成了积极治疗。对幸存者及其父母提交的总共217张照片和采访数据进行主题分析,以确定主题和副主题。分析揭示了五个突出主题:不可磨灭的痕迹、与后期影响的斗争、努力恢复正常、支持的力量,活在当下,对未来充满希望。研究结果揭示了儿科和青少年癌症幸存者及其父母在整个癌症旅程中的经历,阐明了消极和积极方面的影响。此外,该研究强调,光声有助于自我反思、发现价值观和认识优势,并且可以成为儿童和青少年癌症幸存者及其父母在进一步研究中的一种治疗策略。© 2024 作者。约翰·威利出版的心理肿瘤学
Although the relative survival rate of childhood cancer has increased substantially in recent years, the pursuit of successful outcomes is often accompanied by negative impacts on pediatric and adolescent cancer survivors and their parents' physical and psychological well-being. However, little is known about their experiences during the period of cancer survivorship. This study aimed to gain an understanding of the experience of cancer survivorship among pediatric and adolescent cancer survivors and their parents.This study utilized a descriptive qualitative study employing the photovoice design. From September 2022 to March 2023, 17 pediatric and adolescent cancer survivors (9-18 years), who had completed active treatment at least 6 months before recruitment, participated in this study. A total of 217 photographs submitted by survivors and their parents and the interview data, were thematically analyzed to identify themes and subthemes.The analysis revealed five prominent themes: indelible marks, struggling with late effects, striving to return to normalcy, the strength of support, and living in the moment and hope for the future.The findings shed light on the experiences of pediatric and adolescent cancer survivors and their parents throughout the cancer journey, elucidating the influence on both negative and positive aspects. Additionally, the study highlighted that photovoice facilitated self-reflection, the discovery of values, and the recognition of strengths and can be a therapeutic strategy for pediatric and adolescent cancer survivors and their parents in further research.© 2024 The Author(s). Psycho‐Oncology published by John Wiley & Sons Ltd.