研究动态
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看到数字之前的人: 为了更好地理解病人在实际应用中使用患者报告结局测量结果时的生活故事而创建的人物角色。

Seeing the person before the numbers: Personas for understanding patients' life stories when using patient-reported outcome measures in practice settings.

发表日期:2023 Apr
作者: Jae-Yung Kwon, Melissa Moynihan, Francis Lau, Angela C Wolff, Maria-Jose Torrejon, Geraldine Irlbacher, Lillian Hung, Leah Lambert, Richard Sawatzky
来源: INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS

摘要:

在健康信息技术中,患者报告的结果度量标准(PROMs)越来越多地被整合进入,但其中一个挑战是帮助临床医生理解PROMs的回答与患者故事之间的关系,以识别和解决个体患者的护理需求。人物画像是一种创新策略,可以用于支持临床医生在实践中使用PROMs。这些人物画像体现了患者的生命故事,使它们成为了了解人物的宝贵工具。本项目的目的是致力于开发癌症相关经历的人物画像作为知识转化策略,以支持临床医生对于以患者为中心的癌症护理中使用PROMs。8位老年患者参加了在线研讨会(每个工作室2-3位参与者;1.5小时的课程),共同开发反映他们癌症旅程特定阶段的人物画像。参与者被要求确定人物画像的主题,关注人物画像的想法和感受,什么影响了人物画像的行动,以及整体目标。然后,参与者从人物画像的角度完成了情感健康PROM调查。根据研讨会讨论中确定的关键主题,进一步完善人物画像。开发了四个代表工作坊参与者累积经验的人物画像,帮助临床医生将PROMs的回答与患者故事联系起来。这些人物画像成为了四个实践场景的基础,这些场景是临床医生与每一个人物画像之间互动的例子,以证明在实践中使用PROMs的使用。人物画像可以用来描绘患者的生命故事和情境化PROMs数据。作为一种知识转化策略,人物画像可以促进临床医生意识到如何使用PROMs的回答来启动对于更好了解患者独特生活情况的对话。opyright © 2023 Elsevier B.V. All rights reserved.
While patient-reported outcome measures (PROMs) are increasingly being integrated into health information technologies, one challenge has been to assist clinicians in understanding how the responses to PROMs relate to patient stories for identifying and addressing the care needs of individual patients. Personas, hypothetical representations of patients, can be used as an innovative strategy to support clinicians' use of PROMs in their practice. These personas embody patients' life stories, making them a valuable tool for understanding the person when using PROMs. The aim of this project focused on cancer-related experiences to develop personas as a knowledge translation strategy to support clinicians' use of PROMs for person-centred cancer care.Eight older adults participated in online workshops (n = 2-3 participants/workshop; 1.5-hour sessions) to co-develop personas that reflected their collective experiences at a particular stage of their cancer journeys. Participants were asked to identify themes that focused on what the personas were thinking and feeling, what influenced how the personas acted, and the personas' overall goals. Participants subsequently completed an emotional well-being PROM from the perspective of the persona. Personas were further refined based on key themes identified during the workshop discussions.Four personas representing the cumulative experiences of the workshop participants were developed to help clinicians link PROM responses to patient stories. These personas became the basis of four practice scenarios, which were examples of interactions between a clinician and each persona, to demonstrate the use of PROMs in practice.Personas can be used to illustrate patients' life stories and contextualize PROMs data. As a knowledge translation strategy, personas can foster clinician awareness of how responses to PROMs can be used to initiate conversations to better understand patients' unique life situations.Copyright © 2023 Elsevier B.V. All rights reserved.