研究动态
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我希望有资源:直肠癌幸存者护理需求的照片引导研究。

"I Wish There had been Resources": A Photo-Elicitation Study of Rectal Cancer Survivorship Care Needs.

发表日期:2023 Feb 27
作者: Samantha J Rivard, C Ann Vitous, Michaela C Bamdad, Alisha Lussiez, Maia S Anderson, Christopher Varlamos, Ashley Duby, Pasithorn A Suwanabol
来源: ANNALS OF SURGICAL ONCOLOGY

摘要:

直肠癌幸存者经历独特而长期的治疗后症状。既往数据表明,医护人员缺乏鉴别最相关直肠癌幸存者问题的技能。因此,大多数直肠癌幸存者的幸存者保健不完整,报告至少有一个未满足的治疗后需求。这项照片启示性研究将参与者提交的照片和最少结构化的定性访谈相结合,探索生活体验。一个单一三级癌症中心的20名直肠癌幸存者提供了代表他们治疗后生活的照片。通过归纳主题分析的迭代步骤分析抄录的访谈。直肠癌幸存者提出了若干改进他们幸存者保健的建议,分为三大主题:(1)信息需求(例如,更多关于治疗后副作用的细节);(2)持续的多学科随访护理(例如,膳食支持);和(3)支持服务的建议(例如,补贴肠道改变药物和造口用品)。直肠癌幸存者希望获得更详细和个性化的信息,获得长期的多学科随访护理和资源以减轻日常生活的负担。这些需求可以通过重组直肠癌幸存者保健来满足,包括疾病监测,症状管理和支持服务。随着筛查和治疗的持续改善,医护人员必须继续筛查并提供服务,以满足直肠癌幸存者的身体和心理需求。© 2023 年。外科肿瘤学会。
Rectal cancer survivors experience unique, prolonged posttherapy symptoms. Previous data indicate that providers are not skilled at identifying the most pertinent rectal cancer survivorship issues. Consequently, survivorship care is incomplete with the majority of rectal cancer survivors reporting at least one unmet posttherapy need.This photo-elicitation study combines participant-submitted photographs and minimally structured qualitative interviews to explore one's lived experiences. Twenty rectal cancer survivors from a single tertiary canter provided photographs representative of their life after rectal cancer therapy. The iterative steps informed by inductive thematic analysis were used to analyze the transcribed interviews.Rectal cancer survivors had several recommendations to improve their survivorship care, which fell into three major themes: (1) informational needs (e.g., more details about posttherapy side effects); (2) continued multidisciplinary follow up care (e.g., dietary support); and (3) suggestions for support services (e.g., subsidized bowel altering medications and ostomy supplies).Rectal cancer survivors desired more detailed and individualized information, access to longitudinal multidisciplinary follow-up care, and resources to ease the burdens of daily life. These needs may be met through the restructuring of rectal cancer survivorship care to include disease surveillance, symptom management, and support services. As screening and therapy continues to improve, providers must continue to screen and to provide services that address the physical and psychosocial needs of rectal cancer survivors.© 2023. Society of Surgical Oncology.