在儿童癌症幸存者中，有关遵循随访保健的不足为何尚知甚少。本研究对儿童癌症幸存者（N=84）进行了遵循随访保健障碍的特征化，确定了社会人口学相关因素，并检查了遵循随访保健障碍与健康相关生活质量的关系。采用REDCap对成年儿童癌症幸存者进行匿名调查，使用“障碍护理问卷”（BCQ）和“癌症幸存者生活质量量表”（QOL-CS）。进行了描述性分析和相关性分析。BCQ总分中位数为88.5（四分位距为78.4至95.7），所报告的最大障碍出现在技能（如，导航医疗系统的便捷性）和实用主义亚量表（如，费用）方面。BCQ总分与QOL-CS总分（rs=0.47，P<0.0001）以及身体、心理和社交QOL-CS亚量表之间存在统计学上显著的相关性（所有P值<0.05）。研究结果发现，儿童癌症幸存者遵循随访保健的障碍主要与费用和预约安排相关，并且障碍较多与健康相关生活质量较低的儿童癌症幸存者相关。确定遵循随访保健的障碍是改善遵循性的第一步，这将有助于更早地发现癌症治疗的迟发副作用，从而减少发病率和死亡率。版权所有©2023 Wolters Kluwer Health, Inc. 保留所有权利。

Little is known on why adherence to follow-up care in childhood cancer survivors (CCS) is lacking. This study characterized barriers to adherence to follow-up care among CCS, identified sociodemographic correlates of barriers, and examined whether barriers to follow-up care relate to health-related quality of life. Adult CCS (N=84) were anonymously surveyed via REDCap using the Barriers to Care Questionnaire (BCQ) and the Quality of Life Scale-Cancer Survivor (QOL-CS). Both descriptive and correlation analyses were conducted. The median BCQ total score was 88.5 (interquartile ranges:78.4 to 95.7), with the greatest barriers reported in the Skills (eg, ease of navigating the healthcare system) and Pragmatism subscales (eg, cost). There was a statistically significant correlation between the BCQ total score and the QOL-CS total score (rs=0.47, P<0.0001) and the physical, psychological, and social QOL-CS subscales (all P's<0.05). The results found that barriers to follow-up care for CCS are mostly related to cost and appointment logistics, and that more barriers to care is associated with lower health-related quality of life among CCS. Identifying barriers to follow-up care is the first step in improving adherence, which would allow for earlier detection of late effects of cancer therapy and thereby result in reductions in morbidity and mortality.Copyright © 2023 Wolters Kluwer Health, Inc. All rights reserved.