研究动态
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探索被诊断为乳腺癌的父母的青少年的心理社会需求。

Exploring the Psychosocial Needs of Adolescents Whose Parent Is Diagnosed With Breast Cancer.

发表日期:2023 Aug 24
作者: Linda Hertogh, Mandy van Rosmalen, Agnes Jager, Janneke de Man-van Ginkel, Wendy H Oldenmenger
来源: Best Pract Res Cl Ob

摘要:

癌症对个体患者及其家庭,尤其是儿童,有着重大影响。然而,对于父母被诊断出患有癌症的青少年(10-19岁)的需求了解甚少,尤其是乳腺癌患者的青少年。了解心理社会需求对于为这些青少年制定适当的指导和支持至关重要。本研究旨在探索父母被诊断出患有乳腺癌的青少年的心理社会需求,以改善对这些青少年的支持。该研究采用探索性的定性研究方法。进行了深入访谈,并设计了以下话题的访谈指南:经历、需求和支持。研究参与者经过选择性定向选取,并通过咨询父母接触到他们。访谈内容被录音并转录,然后使用NVivo软件进行主题分析。共对14名年龄为12至19岁的青少年进行了访谈,结果得出了五个主题:分心、支持、有能力谈论、信息和过正常的生活。对父母被诊断出患有乳腺癌的青少年来说,最重要的是尽可能保持他们正常的生活。对他们来说,能够分享自己的故事并从亲近的人那里获得支持至关重要。与青少年进行沟通的途径总是通过父母。医疗卫生专业人员可以在与父母进行常规咨询时讨论青少年的福祉。如果有任何担忧,医疗卫生专业人员可以建议父母关注青少年的可能需求,并指导父母支持青少年谈论他们的需求。版权所有 © 2023 作者。由Elsevier Inc.出版。保留所有权利。
Cancer has a major impact on the individual patient and their family, especially children. However, little is known about the needs of adolescents (10-19 years) whose parent is diagnosed with cancer, especially breast cancer. Insights into psychosocial needs are important to develop appropriate guidance and support for these adolescents. The aim of this study is to explore the psychosocial needs of adolescents whose parent is diagnosed with breast cancer to improve the support for these adolescents.This is an exploratory, qualitative study. In-depth interviews were conducted, and an interview guide was designed with the following topics: experiences, needs, and support. Participants were selected purposively and approached via the parent(s) after consultation. Interviews were audiotaped, transcribed, and thematically analyzed by using the software program NVivo.Fourteen adolescents (12-19 years) were interviewed, which resulted in five themes: distraction, support, being able to talk about it, information, and continuing a normal life. Adolescents whose parent is diagnosed with breast cancer need the best possible preservation of their normal lives. It is important for them to be able to share their story and find support from someone close to them.The route to the adolescent is always through the parent. Healthcare professionals can discuss the well-being of the adolescent during regular consultation with the parent. If there are concerns, healthcare professionals can advise the parent about the possible needs of the adolescent and could coach the parent in supporting the adolescent to discuss their needs.Copyright © 2023 The Authors. Published by Elsevier Inc. All rights reserved.