为了研究在姑息护理背景下，家庭患者患有晚期癌症的照顾者负担的多维属性，进行了一项序列性、解释性、混合方法研究。从中国四川省某三级医院的姑息护理科招募了被诊断为晚期癌症的患者的家庭照顾者。使用照顾者负担量表、社会支持评定量表和康纳-戴维森韧性量表收集定量数据，从2022年1月至2022年9月期间共招募了150名照顾者。通过半结构化面谈收集了定性数据，从2022年10月至2022年11月对22名照顾者进行了面谈。使用描述性统计分析了调查数据，并使用曼-惠特尼U检验、克鲁斯卡尔-华利斯H检验和斯皮尔曼相关性分析确定了照顾者负担的因素。进行阐释性现象学分析以初步探索照顾者负担的多维度。采用“以下线索法”和重合编码矩阵进行三角化以研究照顾者负担的多维属性。参与者经历了中度的照顾者负担（32.97 ± 13.09）。通过三角化，确定了六个元主题和九个元子主题作为照顾者负担的多维属性，包括身体（承担过多的照顾任务和健康状况不佳），情绪（由患者痛苦引起的强烈负面情绪和家庭沟通不足和无效），社交（社交互动减少和社会角色冲突）和经济负担，加重负担的因素（预防和控制COVID-19和与患者的配偶关系）以及减轻负担的因素（社会支持）。在姑息护理背景下，家庭照顾者对晚期癌症患者的负担体验了多个维度。需要进一步发展以家庭为中心的姑息护理。发展以家庭为中心的姑息护理非常重要。因此，重点应该在公众中发展对姑息护理的合理理解和在姑息单位进行文化导向的死亡教育。本研究采用混合方法来全面了解中国姑息肿瘤学环境下照顾者负担的现象和因素。我们的研究结果表明，姑息肿瘤学中的家庭照顾者经历了中度的照顾者负担，其中包括身体、情绪、社交和经济负担，其中情绪负担最突出。本研究的发现为政策制定者和护士提供了解决中国姑息单位中以家庭为中心的护理的目标。本研究的结果报告基于混合方法文章报告标准的指导。邀请合格的照顾者参与研究和半结构化面谈。姑息单位的护士经理帮助我们获取患者管理系统。© 2023 John Wiley & Sons Ltd.

To examine the multidimensional properties of caregiver burden among family caregivers of patients with advanced cancer in a palliative context.A sequential, explanatory, mixed-method study was performed.Family caregivers of patients diagnosed with advanced cancer were recruited from a palliative care department of a third-level hospital in Sichuan Province, China. The Caregiver Burden Inventory, Social Support Rating Scale and Connor-Davidson Resilience Scale were used to collect quantitative data, and a total of 150 caregivers were recruited from January 2022 to September 2022. Qualitative data were collected through semi-structured interviews, and a total of 22 caregivers were interviewed from October 2022 to November 2022. Survey data were analysed using descriptive statistics, and the factors of caregiver burden were identified using the Mann-Whitney U test, Kruskal-Wallis H test and Spearman correlations. Interpretative phenomenological analysis was performed to analyse the interview data to initially explore the multidimensions of caregiver burden. The following-a-thread method and convergence coding matrix were used for triangulation to examine the multidimensional properties of caregiver burden.The participants experienced a moderate level of caregiver burden (32.97 ± 13.09). Through triangulation, six meta-themes and nine meta-subthemes were identified as multidimensional properties of caregiver burden, including physical (too many caring tasks and poor health condition), emotional (strong negative emotions resulting from patients' suffering and insufficient and ineffective family communication), social (less social interaction and social role conflict) and economic burdens, factors that aggravate burden (prevention and control of COVID-19 and spousal relationship with patients) and factors that mitigate burden (social support).Multiple dimensions of caregiver burden were experienced by family caregivers of patients with advanced cancer in the palliative context. Family-centred palliative care must be further developed.It is important to develop family-centred palliative care. Therefore, the focus must be on developing a rational understanding of palliative care in public and a culture-oriented death education in palliative units.This study adopted a mixed-method approach to comprehensively understand the phenomenon of and factors in caregiver burden in the Chinese palliative oncology context. Our findings suggest that family caregivers in palliative oncology experience a moderate level of caregiver burden, with dimensions including physical, emotional, social and economic burdens, among which emotional burden is the most prominent. The findings of this study provide policy makers and nurse practitioners with targets to be addressed in family-centred care in Chinese palliative units.The results of this study are reported based on the guidelines of the Mixed-Methods Article Reporting Standards.Eligible caregivers were invited to participate in the study and semi-structured interviews. Nurse managers of the palliative unit helped us access the patient-management system.© 2023 John Wiley & Sons Ltd.