癌症环境中收集社会健康因素数据的移动应用程式的开发与测试:访谈研究。
Development and Testing of a Mobile App to Collect Social Determinants of Health Data in Cancer Settings: Interview Study.
发表日期:2023 Sep 14
作者:
Natasha K Oyedele, Dina G Lansey, Calvin Chiew, Cupid Chan, Harry Quon, Lorraine T Dean
来源:
MOLECULAR & CELLULAR PROTEOMICS
摘要:
社会 determinants (SDOH) 如缺乏基本资源、住房、交通和社会孤立,对癌症患者的护理过程起着重要作用。目前,卫生系统在识别和管理患者 SDOH 数据方面的技术解决方案主要集中在提供者记录的电子健康记录中,而这些往往无法让患者参与或修改。我们开发并测试了一种面向患者的 SDOH 筛查工具,旨在用于患者个人手机上,以保护患者的隐私和保密,收集患有癌症患者未满足的社会需求的信息,并将其传达给提供者。我们面试了与美国综合癌症中心相关的 22 位癌症患者、肿瘤学家和社工,以更好地了解患者的 SDOH 信息如何被收集和报告。通过整合面试、环境调查和对已验证的收集 SDOH 数据的工具进行文献检索的数据,我们开发了一款 SDOH 筛查工具移动应用,并在同一癌症中心对 16 对癌症患者和癌症护理团队成员进行了一项试点研究。我们使用包含 7 个 SDOH 领域的 36 个调查项收集了患者的 SDOH 数据,并使用验证的量表和后续访谈评估了应用在患者和癌症护理团队成员中的可用性和可接受性。形成性面试与患者和护理团队成员的访谈揭示了交通、财务挑战、食品不安全和健康素养低是常见的 SDOH 困境,而收集这些数据、与护理团队成员共享这些数据并提供支持资源的移动应用可能有用且有价值。在试点研究中,25% (4/16) 使用应用的患者报告至少有一项上述社会需求;最常见的社会需求是社会孤立 (7/16,44%)。患者评价该移动应用易于使用、准确捕捉 SDOH,并保护其隐私,但建议应用通过连接患者与实际资源来提供更多帮助。提供者报告了该应用的高可接受性和可用性。使用简洁、面向患者的、基于移动应用的 SDOH 筛查工具可以有效获取癌症患者的 SDOH 数据,以方式保护患者隐私,并对患者和护理团队成员可接受和可用。然而,仅仅收集 SDOH 信息还不足够;通过直接连接患者与资源来应对其未满足的社会需求可以增加实用性。©Natasha K Oyedele, Dina G Lansey, Calvin Chiew, Cupid Chan, Harry Quon, Lorraine T Dean. 原发表于《JMIR形成性研究》(https://formative.jmir.org),2023年9月14日。
Social determinants of health (SDOH) such as lack of basic resources, housing, transportation, and social isolation play an important role for patients on the cancer care continuum. Health systems' current technological solutions for identifying and managing patients' SDOH data largely focus on information recorded in the electronic health record by providers, which is often inaccessible to patients to contribute to or modify.We developed and tested a patient-centric SDOH screening tool designed for use on patients' personal mobile phone that preserves patient privacy and confidentiality, collects information about the unmet social needs of patients with cancer, and communicates them to the provider.We interviewed 22 patients with cancer, oncologists, and social workers associated with a US-based comprehensive cancer center to better understand how patients' SDOH information is collected and reported. After triangulating data obtained from thematic analysis of interviews, an environmental scan, and a literature search of validated tools to collect SDOH data, we developed an SDOH screening tool mobile app and conducted a pilot study of 16 dyadic pairs of patients and cancer care team members at the same cancer center. We collected patient SDOH data using 36 survey items covering 7 SDOH domains and used validated scales and follow-up interviews to assess the app's usability and acceptability among patients and cancer care team members.Formative interviews with patients and care team members revealed that transportation, financial challenges, food insecurity, and low health literacy were common SDOH challenges and that a mobile app that collected those data, shared those data with care team members, and offered supportive resources could be useful and valuable. In the pilot study, 25% (4/16) of app-using patients reported having at least one of the abovementioned social needs; the most common social need was social isolation (7/16, 44%). Patients rated the mobile app as easy to use, accurately capturing their SDOH, and preserving their privacy but suggested that the app could be more helpful by connecting patients to actual resources. Providers reported high acceptability and usability of the app.Use of a brief, patient-centric, mobile app-based SDOH screening tool can effectively capture SDOH of patients with cancer for care team members in a way that preserves patient privacy and that is acceptable and usable for patients and care team members. However, only collecting SDOH information is not sufficient; usefulness can be increased by connecting patients directly to resources to address their unmet social needs.©Natasha K Oyedele, Dina G Lansey, Calvin Chiew, Cupid Chan, Harry Quon, Lorraine T Dean. Originally published in JMIR Formative Research (https://formative.jmir.org), 14.09.2023.