护理人员的负担常常被忽视，并可能严重影响护理人员的身体、心理和财务健康，从而影响护理质量。本研究调查了巴基斯坦一家三级医院慢性病儿童的护理人员的负担。该研究旨在评估负担程度，探讨影响因素和干预建议。混合方法研究，包括面对面的纸质调查，采用 Zarit Burden Interview 量表来评估负担分数。定性部分包括对护理人员进行半结构化深度访谈的主题分析。对我们三级护理中心住院儿科服务的 383 名儿童护理人员进行了调查。对 19 名护理人员进行了深度访谈。调查显示，平均负担得分为 35.35±15.14，近一半的参与者（46%，n=177）有轻度负担，而 37%（n=140）则有中度负担——沉重的负担。最常见的诊断是癌症（24%，n=92），而最高的负担（42.97±15.47）是先天性心脏病。更大的负担与护理人员教育程度较低、诊断时孩子年龄较小以及医院就诊次数增加显着相关（p<0.05）。护理人员强调经济压力、社会心理影响以及对生活方式和人际关系的影响是主要挑战。他们强调需要改善医疗协调、财政支持和加强医院服务。该研究阐明了巴基斯坦儿童慢性疾病背景下护理人员负担的多方面性质。干预措施应强调财政援助、教育支持和系统层面的变革，以改善资源获取和医疗保健协调。这些见解需要政策和实践的整合，以有效地支持护理人员。© 作者（或其雇主）2024。根据 CC BY-NC 允许重复使用。不得商业再利用。请参阅权利和权限。英国医学杂志出版。

Caregiver burden often goes unrecognised and can substantially affect caregivers' physical, psychological and financial well-being, thereby impacting quality of care. This study investigates burden among caregivers of children with chronic medical conditions in a tertiary care hospital in Pakistan. The study aims to assess the extent of burden, explore influencing factors and recommendations for interventions.Mixed-methods study, comprising of an in-person paper-based survey, employing the Zarit Burden Interview scale to assess burden scores. Qualitative component included thematic analysis of semi-structured in-depth interviews with caregivers.383 caregivers of children admitted to the inpatient paediatric services at our tertiary care centre were surveyed. In-depth interviews were conducted with 19 caregivers.The survey revealed a mean burden score of 35.35±15.14, with nearly half of the participants (46%, n=177) experiencing mild burden, while 37% (n=140) reporting moderate-to-severe burden. The most common diagnosis was cancer (24%, n=92), while the highest burden (42.97±15.47) was noted for congenital cardiac disease. Greater burden was significantly associated with lower caregiver education, young age of the child at diagnosis and increased number of hospital visits (p<0.05). Caregivers highlighted financial strain, psychosocial effects and impact on lifestyle and relationships as key challenges. They emphasised the need for improved medical coordination, financial support and enhanced hospital services.The study elucidates the multifaceted nature of caregiver burden in the context of paediatric chronic illnesses in Pakistan. Interventions should emphasise financial aid, educational support and development of system-level changes to improve access to resources and medical care coordination. These insights call for policy and practice integration to support caregivers effectively.© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.