研究动态
Articles below are published ahead of final publication in an issue. Please cite articles in the following format: authors, (year), title, journal, DOI.

Oxford Spine Buddies:脊柱肉瘤服务中点对点支持的可接受性和可行性项目。

Oxford Spine Buddies: an acceptability and feasibility project for peer-to-peer support in a spine sarcoma service.

发表日期:2024 May 23
作者: Jasmine Cammas, Sheto Tomy, Louise Strickland, Gerard Mawhinney
来源: Bone & Joint Journal

摘要:

脊柱原发性骨和软组织肉瘤很少见,占所有肿瘤发病率不到 0.2%。在患者和公众参与活动之后,确定了探索患者支持途径的必要性,从而启动了该服务评估项目。为了确定使用脊柱肉瘤服务的人们对点对点支持项目的可接受性和可行性。用户是通过 Microsoft Teams 进行配对和介绍。收集了介绍好友之前和之后的定量和定性数据。服务用户认为,尽管他们在诊断时更希望有一个好友,但分配一个好友让他们感到放心并得到更好的支持。项目受到好评,初步数据令人鼓舞。因此,由于第一批参与者的早期发现,该服务正在继续推出好友计划。
Primary bone and soft tissue sarcoma of the spine are rare and account for less than 0.2% of all neoplasm incidences. Following a patient and public involvement event, the need to explore patient support pathways was identified, which initiated this service evaluation project.To determine the acceptability and feasibility of a peer-to-peer support project among people using the spine sarcoma service.Users were paired and introduced via Microsoft Teams. Quantitative and qualitative data both pre- and post-introduction of a buddy were collected.Service users felt that, although they would have preferred having a buddy at the time of their diagnosis, being allocated a buddy made them feel reassured and better supported.The project was well received and preliminary data are encouraging. Therefore, due to early findings from the first participants, the service is continuing to roll out the buddy programme.