研究动态
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低/中和高收入国家癌症幸存者心理社会护理国际调查:护理的当前实践、障碍和促进因素。

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care.

发表日期:2024 May
作者: Christina Signorelli, Beverley Lim Høeg, Chioma Asuzu, Isabel Centeno, Tania Estapé, Peter Fisher, Wendy Lam, Inbar Levkovich, Sharon Manne, Anne Miles, Louise Mullen, Larissa Nekhlyudov, Cristina Sade, Joanne Shaw, Anna Singleton, Luzia Travado, Miyako Tsuchiya, Jesse Lemmen, Jie Li, Michael Jefford,
来源: PHYSICAL THERAPY & REHABILITATION JOURNAL

摘要:

全球范围内接受癌症治疗和接受癌症治疗后的癌症幸存者人数正在增加。了解全世界提供的社会心理护理服务的范围和类型至关重要。我们评估了癌症生存护理的模式、治疗后生存阶段的心理社会护理实践以及提供心理社会护理服务的障碍/促进因素,包括在低收入和中等收入国家 (LMIC)。 IPOS)幸存者特别兴趣小组在 2022 年 3 月至 11 月期间领导了一项横断面在线调查。通过 IPOS 全球会员资格、社交媒体和滚雪球的方式邀请了医疗保健专业人员和心理肿瘤学研究人员。该调查针对个人进行,但包括与其国家在国家层面的实践相关的问题。来自 37 个国家的 283 名受访者参与了调查(40% 来自中低收入国家),平均工作经验为 12 年(IQR,6- 20)在心理肿瘤学领域。参与者报告说,常规生存护理的最常见要素与复发/新发癌症的预防/管理(74%)、身体后期影响(59%)和慢性疾病(53%)有关,而监测/管理社会心理迟发效应(27%)和社会心理/支持性护理(25%)最不常见。高收入国家 (HIC) 比中低收入国家更常报告与生殖健康 (29% 对 17%)、遗传咨询/支持 (40% 对 20%) 以及识别/管理痛苦 (39% 对 26) 相关的服务可用性%)和疼痛(66% 对 48%)。主要障碍包括提供者关注治疗而非生存(57%)、医疗而非心理社会护理(60%)以及缺乏提供心理社会护理的联合医疗服务提供者(59%)。癌症患者的心理社会需求没有得到充分满足由于患者、提供者和系统层面的障碍,即使在高收入国家,治疗后生存也可用和/或提供。
The number of cancer survivors living with and beyond cancer treatment is rising globally. It is fundamental to understand the extent and type of psychosocial care services offered worldwide. We evaluated models of cancer survivorship care, psychosocial care practices in the post-treatment survivorship phase, and barriers/facilitators to delivery of psychosocial care services, including in low- and middle-income countries (LMICs).The International Psycho-Oncology Society (IPOS) Survivorship Special Interest Group led a cross-sectional online survey between March and November 2022. Health care professionals and researchers in psycho-oncology were invited through the IPOS global membership, social media, and snowballing. The survey was administered to individuals but included questions related to practices in their country at a national level.Two hundred eighty-three respondents from 37 countries participated (40% from LMICs), with a median of 12 years of experience (IQR, 6-20) in the psycho-oncology field. Participants reported that the most common elements of routine survivorship care were related to the prevention/management of recurrences/new cancers (74%), physical late effects (59%), and chronic medical conditions (53%), whereas surveillance/management of psychosocial late effects (27%) and psychosocial/supportive care (25%) were least common. Service availability was more commonly reported in high-income countries (HICs) than LMICs related to reproductive health (29% v 17%), genetic counseling/support (40% v 20%), and identifying/managing distress (39% v 26%) and pain (66% v 48%). Key barriers included providers focusing on treatment not survivorship (57%), medical not psychosocial care (60%), and a lack of allied health providers to deliver psychosocial care (59%).The psychosocial needs of people living with cancer are not adequately available and/or provided in post-treatment survivorship even in HICs, because of barriers at patient, provider, and system levels.