研究动态
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家庭临终关怀症状监测工具的可访问性、相关性和影响:理论阐述和定性评估。

Accessibility, Relevance, and Impact of a Symptom Monitoring Tool for Home Hospice Care: Theory Elaboration and Qualitative Assessment.

发表日期:2024 May 23
作者: Karla T Washington, Debra Parker Oliver, Allison K Donehower, Patrick White, Jacquelyn J Benson, Patrick G Lyons, George Demiris
来源: MEDICINE & SCIENCE IN SPORTS & EXERCISE

摘要:

早期用户发现,用于改善肿瘤护理症状的参与和可视化 (ENVISION) 是一款基于网络的应用程序,旨在改善临终关怀患者症状的家庭管理并支持患者和家庭护理人员的福祉,通常有用且易于使用使用。然而,他们也对技术熟练程度有限的用户可能遇到的潜在挑战表示担忧。我们试图同时实现两个相互关联的研究目标:(1) 开发健康信息系统的数字包容性概念框架;(2) 应用该框架评估 ENVISION 应用程序的数字包容性。我们让 ENVISION 用户 (N=34) 参与一项定性研究,通过直接观察、出声思考技术和对开放式查询的回答来收集数据。通过理论阐述和基本定性描述对数据进行分析。可及性、相关性和影响被确定为评估卫生系统数字包容性的 3 个基本考虑因素。研究结果普遍支持 ENVISION 的数字包容性,特别是它与家庭护理人员和临终关怀临床医生的工作的相关性及其对症状管理和生活质量的潜在积极影响。 ENVISION 数字包容性的局限性主要集中在可访问性问题,特别是技术知识和技能有限的个人之间的可操作性。健康信息系统数字包容性的可访问性、相关性和影响概念框架可以帮助确定加强工具的数字包容性的机会,例如 ENVISION,旨在供广泛和多样化的用户使用。©Karla T Washington、Debra Parker Oliver、Allison K Donehower、Patrick White、Jacquelyn J Benson、Patrick G Lyons、George Demiris。最初发表于 JMIR Human Factors (https:// humanfactors.jmir.org),2024 年 5 月 23 日。
Early users found Engagement and Visualization to Improve Symptoms in Oncology Care (ENVISION), a web-based application designed to improve home management of hospice patients' symptoms and support patients' and family caregivers' well-being, to be generally useful and easy to use. However, they also raised concerns about potential challenges users with limited technological proficiency might experience.We sought to concurrently accomplish two interrelated study aims: (1) to develop a conceptual framework of digital inclusivity for health information systems and (2) to apply the framework in evaluating the digital inclusivity of the ENVISION application.We engaged ENVISION users (N=34) in a qualitative study in which data were collected via direct observation, think-aloud techniques, and responses to open-ended queries. Data were analyzed via theory elaboration and basic qualitative description.Accessibility, relevance, and impact were identified as 3 essential considerations in evaluating a health system's digital inclusivity. Study findings generally supported ENVISION's digital inclusivity, particularly concerning its perceived relevance to the work of family caregivers and hospice clinicians and its potentially positive impact on symptom management and quality of life. Limitations to ENVISION's digital inclusivity centered around issues of accessibility, particularly operability among individuals with limited technological knowledge and skills.The Accessibility, Relevance, and Impact conceptual framework of digital inclusivity for health information systems can help identify opportunities to strengthen the digital inclusivity of tools, such as ENVISION, intended for use by a broad and diverse range of users.©Karla T Washington, Debra Parker Oliver, Allison K Donehower, Patrick White, Jacquelyn J Benson, Patrick G Lyons, George Demiris. Originally published in JMIR Human Factors (https://humanfactors.jmir.org), 23.05.2024.