腹膜癌病（PC）在晚期妇科癌症和胃肠道癌症患者中很常见。 PC 患者经常接受姑息手术或治疗疾病相关并发症和副作用的手术。然而，有关患者和家庭护理人员对这些手术的决策过程的数据有限。因此，我们试图描述选择接受姑息性手术的 PC 患者及其家庭护理人员的决策经历。我们对 BOLSTER（护士主导的远程医疗）试点随机对照试验期间收集的定性数据进行了二次分析对急性住院和姑息治疗后 PC 患者及其护理人员进行干预。两个研究组的参与者都在半结构化访谈中描述了他们的经历。我们重新分析了编码的定性数据，重点是使用传统内容分析来了解有关姑息性手术和程序的决策经验。对 32 名参与者、23 名患者和 9 名护理人员的访谈进行了分析。参与者表示，由于疾病的不确定性以及与外科和肿瘤内科团队进行清晰、有效沟通的愿望，他们的决策变得复杂。参与者要求更多有关姑息治疗对其日常生活影响的信息。一些人还指出，如果不加深理解，患者和家庭护理人员的目标与姑息治疗之间的不一致可能会无意中增加痛苦。与患者的目标和偏好相关的讨论可以提高 PC 患者及其护理人员的治疗决策质量。未来的研究应该测试干预措施，以提高晚期癌症患者对姑息性手术和程序的疾病理解和决策。版权所有 © 2024。由 Elsevier Inc. 出版。

Peritoneal carcinomatosis (PC) is common in patients with advanced gynecologic and gastrointestinal cancers. Frequently, patients with PC undergo palliative surgery or procedures to manage disease-related complications and side effects. However, there are limited data regarding patients' and family caregivers' decision-making processes about these procedures. Thus, we sought to describe the decision-making experiences of patients with PC who elect to pursue palliative surgical procedures and their family caregivers.We conducted a secondary analysis of qualitative data collected during a pilot randomized controlled trial of BOLSTER, a nurse-led telehealth intervention for patients with PC and their caregivers after an acute hospitalization and palliative procedure. Participants in both study arms described their experiences in semi-structured interviews. We re-analyzed coded qualitative data with a focus on understanding decision-making experiences surrounding palliative surgery and procedures using conventional content analysis.Interviews from 32 participants, 23 patients and 9 caregivers, were analyzed. Participants reported their decision-making was complicated by illness uncertainty and a desire for clear, effective communication with surgical and medical oncology teams. Participants requested more information about the impact of palliative procedures on their daily life. Several also noted that, without improved understanding, a misalignment between patient and family caregiver goals and palliative procedures may inadvertently increase suffering.Discussions related to patients' goals and preferences can improve the quality of treatment decision-making in patients with PC and their caregivers. Future research should test interventions to improve advanced cancer patients' illness understanding and decision-making surrounding palliative surgery and procedures.Copyright © 2024. Published by Elsevier Inc.