先前的研究表明，对儿科姑息治疗的需求不断增长，但许多国家缺乏对患有生命限制的儿童和年轻人使用服务的普遍程度的了解。本研究旨在估计（1）患有生命限制疾病的儿童和年轻人的年患病率，以及（2）他们的专业姑息治疗和其他医疗保健利用率。使用了台湾健康与福利数据科学中心的数据。纳入2008年至2017年住院或门诊数据记录的所有0~25岁儿童和青壮年，以及具有生命限制疾病诊断代码的死亡数据中≥<1岁的婴儿。泊松回归用于以 95% 置信区间估计生命限制疾病患病率的粗略和调整相对风险，并根据年龄和性别进行调整，并评估专门姑息治疗中每个生命限制诊断组的患病率趋势数据包含 236,250 名患有生命限制疾病的个体，其中肿瘤和先天性异常是最常见的。 10 年来，生命限制性疾病的患病率年均增长 36.4%，从 45,311 例（每 10,000 人 59.4 例）增至 52,226 例（每 10,000 人 81.0 例），其中 21-25 岁人群患病率最高。除肿瘤、循环和“其他”组外，所有诊断组的患病率均显着增加 (p< .001)。随着时间的推移，包括家庭咨询、共享护理、家访在内的专业姑息治疗服务的使用量有所增加 (p< .001)，而住院临终关怀服务则略有减少。医疗保健使用率最高的是中药（2017 年每 1,000 人中有 237.1 人），但这一比例随着时间的推移而下降 (p< .001)。由于多学科护理的趋势不断增长，医疗保健专业人员和政策制定者必须参与并采取行动扩大专业姑息治疗并整合其他医疗服务的提供。中药的使用率呈下降趋势，但仍然是最高的使用率，需要进一步关注。© 2024。作者。

Previous studies have shown a growing need for pediatric palliative care, but there is a lack of knowledge in many countries concerning prevalence of service use among children and young adults with life-limiting conditions. This study aimed to estimate (1) the annual prevalence of children and young adults with a life-limiting condition, and (2) their specialized palliative care and other healthcare utilization.Data from the Health and Welfare Data Science Center in Taiwan were used. All children and young adults aged 0-25 years recorded in inpatient or outpatient data, and infants aged < 1 year in death data with a life-limiting condition diagnostic code from 2008 to 2017 were recruited. Poisson regression was used to estimate the crude and adjusted relative risk of prevalence of life-limiting conditions with 95% confidence intervals, adjusted for age and sex, and to evaluate the trend in prevalence of each life-limiting diagnostic groups, in specialized palliative care and other service use.Data contained 236,250 individuals with a life-limiting condition, of which oncological and congenital abnormalities were the most common. There was an annualized increase over 10 years in the prevalence of life-limiting conditions of 36.4%, from 45,311 cases (59.4 per 10,000 population) to 52,226 cases (81.0 per 10,000 population), with the highest prevalence in individuals aged 21-25 years. All diagnostic groups showed significant increases in prevalence (p < .001) with the exception of oncology, circulatory, and "other" group. Specialized palliative care services, including family consultation, shared care, home visits have increased in use over time (p < .001), while inpatient hospice has slightly decreased. The highest prevalence of healthcare use was for traditional Chinese medicine (237.1 per 1,000 population in 2017), but this decreased over time (p < .001).Due to a growing trend towards multidisciplinary care, healthcare professionals and policymakers must engage and take action to expand specialized palliative care and integrate delivery of other healthcare services. Traditional Chinese medicine having a decreasing slope, yet still the highest prevalence of use, needs further attention.© 2024. The Author(s).