从健康父母的角度来看,受父母癌症影响的家庭的沟通模式——复杂干预家庭-SCOUT 的过程评估。
Communication patterns in families affected by parental cancer from the healthy parents' perspective-process evaluation of the complex intervention Family-SCOUT.
发表日期:2024 Jul 10
作者:
L Heier, J Weiß, C Heuser, H Nakata, E Brock-Midding, R Horbach-Bremen, T H Brümmendorf, M Brüne, M Dohmen, B Drueke, F Geiser, S Holsteg, A Icks, A Karger, J Panse, A Petermann-Meyer, A Viehmann, N Ernstmann
来源:
Stem Cell Research & Therapy
摘要:
在患有父母癌症的家庭中,开放的沟通会影响父母及其孩子的福祉;然而,对这些家庭的沟通模式的研究有限。本子研究通过 Family-SCOUT 研究解决了这个问题,这是一项涉及干预组 (IG) 和对照组 (CG) 的多中心、前瞻性、干预性和非随机调查。本子研究的目的是识别和比较 IG 和 CG 之间沟通模式的差异,作为流程评估的一部分。两组的研究问题均得到解决:健康的父母在家庭中感知到的沟通模式是什么?该研究采用定性方法,采访了健康的父母作为他们家庭的代理人。采访被录音、转录并使用模板分析进行编码。所得数据在小组层面进行分析。IG 中进行了 23 次访谈,CG 中进行了 27 次访谈。主题分析集中于家庭结构中的沟通模式。两个小组都表现出了关于恐惧和愿望的公开交流,以及在讨论癌症时使用儿童友好的语言。观察到显着差异:CG 采访中严重报道了与儿童开放式沟通的挑战,IG 采访中严重描述了“必要时讨论疾病”。这项研究强调需要解决和鼓励患有父母癌症的家庭内部进行开放式沟通.© 2024。作者。
Within families affected by parental cancer, open communication impacts the well-being of parents and their children; however, limited research exists on communication patterns in these families. This sub-study addresses this through the Family-SCOUT study, a multicenter, prospective, interventional, and non-randomized investigation with intervention (IG) and control group (CG). The purpose of this sub-study was to identify and compare the differences in communication patterns between the IG and CG as part of the process evaluation. The research question was addressed in both groups: What communication patterns do healthy parents perceive within their families?Using a qualitative approach, the study involved interviewing healthy parents as surrogates for their families. The interviews were audio-recorded, transcribed, and coded using a template analysis. The resulting data were analyzed at the group level.Twenty-three interviews were conducted in the IG and 27 interviews in the CG. The analysis of themes centered on communication patterns as seen in the family structure. Both groups exhibited instances of open communication about fears and wishes as well as the use of child-friendly language when discussing cancer. Notable differences were observed: challenges in open communication with children were sorely reported in CG interviews, and "the illness is discussed when necessary" was sorely described in IG interviews.This study underscores the need to address and encourage open communication within families with parental cancer.© 2024. The Author(s).