家庭是儿科姑息治疗 (PPC) 服务的重要提供者和接受者。了解家庭科学和 PPC 研究交叉点的证据范围和性质对于制定以家庭为中心的干预措施以增强儿童和家庭健康是必要的。探索并描述儿科严重疾病对家庭的影响。我们在图书馆员的协助下进行了一项研究使用 Arskey 和 O'Malley 的方法进行范围界定审查。我们检索了 PubMed、Scopus、CINAHL 和 EMBASE 数据库，查找 2016 年至 2021 年以英文出版的、重点关注家庭应对严重儿科疾病的实证出版物。两名评审员评估了资格，第三名评审员解决了差异。我们使用 Covidence 和 REDCap 进行数据管理和提取。我们筛选了 10,983 篇摘要； 309 篇摘要纳入全文筛选。最后一组 52 次引用由整个团队进行了分析。大多数研究是在西欧和北美进行的。最常描述癌症儿童父母的观点；患重病的青少年及其兄弟姐妹的声音很少出现。大多数研究都是描述性定性研究，其次是描述性定量研究。很少有研究是混合方法、推理或解释的。研究最常描述父母、青少年和家庭的疾病经历，较少探讨家庭过程和关系。无论采用何种方法（即定性、定量），很少有研究将家庭作为分析单位或使用家庭层面的分析技术。研究参与者通常来自当地占主导地位的人群，很少来自历史上边缘化的社区。描述严重儿科疾病对家庭的影响的强有力的、描述性的、个人层面的证据为未来的研究重点提供了坚实的基础。在儿科姑息治疗研究中加强家庭技术和不同家庭声音的整合可以澄清家庭过程，阐明结构性障碍，并为响应家庭需求的干预措施提供信息。这些步骤将加强 PPC 的教育、政策和临床服务，让所有受益者受益，从而促进患有严重疾病的儿童及其家人的健康公平。版权所有 © 2024。由 Elsevier Inc. 出版。

Families are vital providers and recipients of pediatric palliative care (PPC) services. Understanding the scope and nature of evidence at the intersection of family science and PPC research is necessary to develop family-focused interventions that enhance child and family health.Explore and describe the family-level impact of pediatric serious illness.We conducted a librarian-assisted scoping review using Arskey and O'Malley's approach. We searched PubMed, Scopus, CINAHL, and EMBASE databases for empirical publications from 2016-2021 that focused on families navigating serious pediatric illness published in English. Two reviewers assessed eligibility, with discrepancies resolved by a third. We used Covidence and REDCap for data management and extraction.We screened 10,983 abstracts; 309 abstracts were included in full text screening. The final group of 52 citations was analyzed by the entire team. Most research was conducted in Western Europe and North America. The perspectives of parents of children with cancer were most frequently described; voices of seriously ill youth and their siblings were less often presented. Most of the research was descriptive qualitative, followed by descriptive quantitative. Few studies were mixed methods, inferential, or interpretive. Studies most often described parent, youth, and family experience with illness and less often explored family processes and relationships. Irrespective of the approach (i.e., qualitative, quantitative), few studies focused on families as the analytic unit or used family-level analysis techniques. Study participants were usually from local dominant populations and less often from historically marginalized communities.The robust, descriptive, and individual-level evidence describing family impact of serious pediatric illness provides a solid foundation for future research priorities. Stronger integration of family techniques and diverse family voices in pediatric palliative care research can clarify family processes, illuminate structural barriers, and inform interventions that are responsive to family needs. These steps will enhance the education, policy, and clinical provision of PPC to all who would benefit, thereby advancing health equity for children living with serious illness and their families.Copyright © 2024. Published by Elsevier Inc.