神经肿瘤患者和护理人员应该有公平的机会获得康复、支持和姑息治疗。为了调查现有问题和潜在的解决方案，我们对神经肿瘤学专业人士进行了调查，以探讨当前筛查患者需求和转诊服务的障碍和促进因素。欧洲神经肿瘤学协会和欧洲脑癌研究与治疗组织的成员肿瘤小组 (EORTC-BTG) 应邀填写了一份包含 39 项的在线调查问卷，涵盖服务的可用性、筛查和转诊实践。对答复进行描述性分析；探讨了社会人口统计学/临床变量与筛查/转诊实践之间的关联。总共 103 名参与者完成了调查（67% 为女性，57% 为医生）。来自 23 个国家的 15 个专业人士出席了会议。虽然可以提供各种康复、支持和姑息治疗服务，但 21-37% 的参与者认为“不足”。大多数具有临床角色的受访者 (n = 94) 声称会定期筛查 (78%) 并转介 (83%) 患者的身体/认知/情感问题。调查完成者 (n = 103) 表示未筛选/转介的主要原因是 (1) 缺乏合适的转介选项 (50%)； （2）医疗保健专业人员短缺（48%）； (3) 等候名单较长（42%）。为了改善服务提供，受访者建议需要进行有关神经肿瘤学特定问题的教育（75%），改善服务（65%）和工作人员（64%）的可用性，制定国际指南（64%），以及加强现有的康复证据基础（60%）。可以改善检测和管理神经肿瘤患者和护理人员的康复、支持和姑息治疗需求。更好的国际合作有助于解决医疗保健差异。© 作者 2024。由牛津大学出版社代表神经肿瘤学会和欧洲神经肿瘤学会出版。版权所有。如需商业重复使用，请联系 reprints@oup.com 获取转载和转载的翻译权。所有其他权限均可通过我们网站文章页面上的“权限”链接通过我们的 RightsLink 服务获得 - 欲了解更多信息，请联系journals.permissions@oup.com。

Neuro-oncology patients and caregivers should have equitable access to rehabilitation, supportive-, and palliative care. To investigate existing issues and potential solutions, we surveyed neuro-oncology professionals to explore current barriers and facilitators to screening patients' needs and referral to services.Members of the European Association of Neuro-Oncology and the European Organisation for Research and Treatment of Cancer Brain Tumor Group (EORTC-BTG) were invited to complete a 39-item online questionnaire covering the availability of services, screening, and referral practice. Responses were analyzed descriptively; associations between sociodemographic/clinical variables and screening/referral practice were explored.In total, 103 participants completed the survey (67% women and 57% medical doctors). Fifteen professions from 23 countries were represented. Various rehabilitation, supportive-, and palliative care services were available yet rated "inadequate" by 21-37% of participants. Most respondents with a clinical role (n = 94) declare to screen (78%) and to refer (83%) their patients routinely for physical/cognitive/emotional issues. Survey completers (n = 103) indicated the main reasons for not screening/referring were (1) lack of suitable referral options (50%); (2) shortage of healthcare professionals (48%); and (3) long waiting lists (42%). To improve service provision, respondents suggested there is a need for education about neuro-oncology-specific issues (75%), improving the availability of services (65%) and staff (64%), developing international guidelines (64%), and strengthening the existing evidence-base for rehabilitation (60%).Detecting and managing neuro-oncology patients' and caregivers' rehabilitation, supportive,- and palliative care needs can be improved. Better international collaboration can help address healthcare disparities.© The Author(s) 2024. Published by Oxford University Press on behalf of the Society for Neuro-Oncology and the European Association of Neuro-Oncology. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.