研究动态
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监狱中的癌症:诊断和治疗的障碍和推动因素。

Cancer in prison: barriers and enablers to diagnosis and treatment.

发表日期:2024 Jun
作者: Jo Armes, Renske Visser, Margreet Lüchtenborg, Jennie Huynh, Sue Wheatcroft, Anthony X, Alyce-Ellen Barber, Emma Plugge, Rachel M Taylor, Rachael Maree Hunter, Elizabeth Anne Davies
来源: ECLINICALMEDICINE

摘要:

英格兰和威尔士每年约有 82,000 人入狱。对这一人群癌症的研究有限,而且没有一项研究探索被监禁的癌症患者的经历。本研究旨在解决这一差距。我们进行了 55 次半结构化、定性、录音采访,对象包括:被监禁的癌症患者 (n = 24)、看守人员 (n = 6)、监狱医护人员 (n = 16) 和肿瘤学专家(n = 9)。数据收集时间为2019年7月10日至2020年3月20日。监狱医护人员招募患者并进行面对面访谈。通过专业网络招募专业人员,并通过面对面或电话进行面试。使用反思性主题分析对转录的访谈进行分析。我们还分析了针对监狱中确诊患者 (n = 78) 和普通人群 (n = 390) 的相关国家癌症患者体验调查 (NCPES) 问题。我们的研究结果强调了监狱服刑人员癌症护理的复杂性。我们确定了三个核心主题:控制和选择、沟通以及照顾和监护。虽然监狱中的人们遵循与社区中类似的诊断途径,但诊断还存在其他障碍,包括健康素养、全科医生预约系统以及监狱和肿瘤科工作人员之间的沟通。监狱中的控制和选择之间的紧张关系影响了癌症护理体验的各个方面,例如症状管理和获取癌症信息。 NCPES 结果支持了定性研究结果,并显示监狱中的人报告的经历比一般人群明显较差。我们的研究结果证明了拘留环境中癌症护理的复杂性,确定了公平癌症护理提供的障碍和推动因素,并提供了有关如何改善护理的见解国家卫生和社会保健研究所研究交付研究计划 16/52/53 和战略优先基金 2019/20 研究英格兰通过萨里大学。Crown 版权所有 © 2024 由爱思唯尔有限公司出版。
Approximately 82,000 people are in prison annually in England and Wales. Limited research has investigated cancer in this population and none has explored experiences of imprisoned people with cancer. This study aimed to address this gap.We conducted 55 semi-structured, qualitative, audio-recorded interviews with: imprisoned people with cancer (n = 24), custodial staff (n = 6), prison healthcare staff (n = 16) and oncology specialists (n = 9). Data were collected 07/10/2019-20/03/2020. Patients were recruited by prison healthcare staff and interviews were conducted face-to-face. Professionals were recruited via professional networks and interviews were conducted face-to-face or via telephone. Transcribed interviews were analysed using reflexive thematic analysis. We also analysed relevant National Cancer Patient Experience Survey (NCPES) questions for those diagnosed in prison (n = 78) and in the general population (n = 390).Our findings highlight the complexities of cancer care for imprisoned people. We identified three core themes: control and choice, communication, and care and custody. Whilst people in prison follow a similar diagnostic pathway to those in the community, additional barriers to diagnosis exist including health literacy, the General Practitioner appointment booking system and communication between prison and oncology staff. Tensions between control and choice in prison impacted aspects of cancer care experience such as symptom management and accessing cancer information. NCPES results supported the qualitative findings and showed people in prison reported significantly poorer experiences than in the general population.Our findings demonstrate the complexity of cancer care in custodial settings, identifying barriers and enablers to equitable cancer care provision and offering insights on how to improve care for this population.National Institute for Health and Social Care Research Delivery Research Programme 16/52/53 and Strategic Priorities Fund 2019/20 Research England via University of Surrey.Crown Copyright © 2024 Published by Elsevier Ltd.