作者试图了解失去亲人的家庭对临终关怀 (EOL) 的偏好，特别是黑人家庭和南方家庭。对 6 个月前在儿童医院死于癌症的儿童的父母进行了半结构化访谈。阿拉巴马州。通过内容分析确定主题。与医疗强度、化疗和死亡地点 (LOD) 相关的报价采用 5 点李克特量表评分，范围从 1（舒适护理、化疗或家庭死亡）到 5（医疗密集护理、避免化疗或住院） 27 名失去亲人的父母（12 名黑人）接受了采访。儿童死亡的平均年龄为 13.1 岁（SD = 6.1 岁），调查前的中位数为 3 岁（范围 = 1-12 岁）。 10 名儿童 (42%) 患有中枢神经系统肿瘤，大多数 (63%) 在医院死亡。家庭决策涉及保持希望、不造成伤害、做对孩子和他们自己最有利的事情以及宗教信仰。在家死亡与医院死亡没有明显的偏好（3.0 [1.8-4.0]）。相反，父母会考虑孩子的愿望和/或医疗需求、兄弟姐妹以及之前的死亡经历。为了有一个舒适的死亡，父母强调需要对孩子的生命终止进行全面教育、一个充满关爱和舒适的环境以及 24/7 全天候护理团队的服务。家庭在 EOL 时表达了对舒适护理 (1.8 [1.3-2.8]) 和化疗 (3.5 [2.7-4.1]) 的双重偏好。家庭并不认为化疗和舒适护理是相互冲突的目标。他们寻求高质量的护理，强调灵活性、与孩子共度美好时光，以及与护理团队的开放接触，无论 LOD 如何。© 2024 美国癌症协会。

The authors sought to understand bereaved family preferences for end-of-life (EOL) care, particularly among Black families and those in the South.Semi-structured interviews were conducted with parents of children who died of cancer ≥6 months before at Children's of Alabama. Themes were identified via content analysis. Quotes related to medical intensity, chemotherapy, and location of death (LOD) were scored on 5-point Likert scales, ranging from 1 (comfort care, chemotherapy, or home death) to 5 (medically intense care, avoidance of chemotherapy, or hospital death).Twenty-seven bereaved parents (12 Black) were interviewed. Children died at a mean of 13.1 years (SD = 6.1 years) and a median of 3 years before the interview (range = 1-12 years). Ten children (42%) had central nervous system tumors and the majority (63%) died in the hospital. Family decision-making involved maintaining hope, not causing harm, doing what was best for their child and themselves, and religious beliefs. There was no clear preference for home versus hospital death (3.0 [1.8-4.0]). Instead, parents considered their child's desires and/or medical needs, siblings, and prior experiences with death. To have a comfortable death, parents highlighted the need for comprehensive education about their child's EOL, a caring and comfortable environment, and 24/7 access to their care team. Families expressed a dual preference for comfort care (1.8 [1.3-2.8]) and chemotherapy (3.5 [2.7-4.1]) at EOL.Families did not see chemotherapy and comfort care as conflicting goals. They sought quality care emphasizing flexibility, quality time with their child, and open access to their care team, regardless of LOD.© 2024 American Cancer Society.