解释骨肉瘤和巨型假体患者的康复需求:一项定性、扎根的理论研究。
Explaining needs for rehabilitation in patients with bone sarcoma and a megaprosthesis: a qualitative, grounded theory study.
发表日期:2024 Aug 24
作者:
Jorinde Jpm Denissen, Ingrid Cm van der Geest, Gerben van Hinte, Ingrid Me Desar, Philip J van der Wees, Niek Koenders
来源:
Bone & Joint Journal
摘要:
为了解释骨肉瘤患者在手术切除和巨型假体重建前后的康复需求。我们按照建构主义扎根理论原则进行了一项定性研究。我们有目的地招募了丰富的案例。使用半结构化访谈收集数据,并使用扎根理论数据分析进行分析。最初的、集中的和理论的编码首先由两位作者独立进行,然后在与所有作者的共识会议上进行讨论。最终创建了一个概念模型。2023 年 3 月至 5 月期间对 13 名参与者进行了采访。发现了 7 个理论代码。首先是需要实现新常态,能够在新常态生活中利用他们的病史和巨型假肢发挥作用。患者需要的两个关键价值观是被理解和做好准备。患者需要的四个重要条件是:最佳的康复条件、值得信赖的物理治疗师、明确的康复结束以及获得医院的专业知识。核心类别是实现新常态。骨肉瘤患者需要康复以实现新常态生活。随着对康复需求的了解,应该更好地定制骨肉瘤患者的护理。
To explain the needs for rehabilitation of patients with bone sarcoma before and after surgical resection and reconstruction with megaprosthesis.We performed a qualitative study following constructivist grounded theory principles. We purposefully recruited rich cases. Data were collected using semi-structured interviews and analyzed with grounded theory data-analysis. Initial, focused, and theoretical coding were first performed independently by two authors and followed by discussion in consensus meetings with all authors. Ultimately, a conceptual model was created.Thirteen participants were interviewed between March and May 2023. Seven theoretical codes were found. The first is the need to achieve a new normal, being able to function with their medical history and megaprosthesis in a new normal life. Two key values patients needed were being understood and being prepared. Four important conditions that patients needed were: optimal conditions for rehabilitation, a trustworthy physical therapist, a clear closure from rehabilitation, and access to expertise in the hospital. The core category was achieving a new normal.Patients with bone sarcoma need rehabilitation to achieve a new normal life. With the understanding of needs regarding rehabilitation now gained, the care for patients with bone sarcoma should be better tailored.