研究动态
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癌症相关疲劳的理想干预措施:来自患者、社区合作伙伴和医疗保健提供者的定性研究结果。

An Ideal Intervention for Cancer-Related Fatigue: Qualitative Findings from Patients, Community Partners, and Healthcare Providers.

发表日期:2024 Jul 30
作者: Nicole Anna Rutkowski, Georden Jones, Jennifer Brunet, Sophie Lebel
来源: PHYSICAL THERAPY & REHABILITATION JOURNAL

摘要:

患者一致将癌症相关疲劳 (CrF) 视为最普遍、最令人衰弱的症状。 CrF 是一个重要但经常被忽视的患者问题,部分原因是实施循证干预措施存在障碍。本研究从不同利益相关者的角度探讨了 CrF 的理想干预措施及其实施的障碍。招募了三个参与者群体:医疗保健提供者 (HCP;n = 32)、社区支持提供者 (CSP;n = 14) 和癌症患者 (n = 16)。通过九个焦点小组和四次半结构化访谈收集数据。使用内容分析将数据编码为主题。围绕解决 CrF 问题出现了两个主题:“这需要一个村庄”和“这并不容易”。参与者讨论了 CrF 干预可以在任何地方,由任何人和每个人提供,并且在整个癌症经历中尽早和频繁地提供,并且可以包括同伴支持、心理教育、身体活动、身心干预和跨学科护理。患者、HCP 和 CSP 描述了实施的几个潜在障碍,包括患者障碍(即患者变异性、可及性、在线素养和信息过载)和系统障碍(即成本、缺乏 HCP 知识、系统不足和时间) )。由于 CrF 是一种常见的治疗后症状,因此必须为患者提供足够的支持来控制 CrF。这项研究为在加拿大和其他地方实施以患者为中心的 CrF 干预措施奠定了基础。
Patients consistently rate cancer-related fatigue (CrF) as the most prevalent and debilitating symptom. CrF is an important but often neglected patient concern, partly due to barriers to implementing evidence-based interventions. This study explored what an ideal intervention for CrF would look like from the perspectives of different stakeholders and the barriers to its implementation. Three participant populations were recruited: healthcare providers (HCPs; n = 32), community support providers (CSPs; n = 14), and cancer patients (n = 16). Data were collected via nine focus groups and four semi-structured interviews. Data were coded into themes using content analysis. Two main themes emerged around addressing CrF: "It takes a village" and "This will not be easy". Participants discussed an intervention for CrF could be anywhere, offered by anyone and everyone, and provided early and frequently throughout the cancer experience and could include peer support, psychoeducation, physical activity, mind-body interventions, and interdisciplinary care. Patients, HCPs, and CSPs described several potential barriers to implementation, including patient barriers (i.e., patient variability, accessibility, online literacy, and overload of information) and systems barriers (i.e., costs, lack of HCP knowledge, system insufficiency, and time). As CrF is a common post-treatment symptom, it is imperative to offer patients adequate support to manage CrF. This study lays the groundwork for the implementation of a patient-centered intervention for CrF in Canada and possibly elsewhere.