姑息治疗 (PC) 在美国显示出显着增长，并且与患者和护理人员体验的改善相关。然而，有人担心 PC 在儿科肿瘤学中并未得到充分利用。了解父母对 PC 的态度对于提高 PC 利用率至关重要。本研究旨在探讨儿科肿瘤学中失去亲人的父母对 PC 的态度。本研究使用的数据来自 Alex 的柠檬水摊：我的童年癌症丧亲调查。该调查包括有关失去亲人的父母对 PC 的态度的问题。该调查包括 72 个失去亲人的家庭。父母在孩子去世后平均 11 年完成了调查。 71%的案件涉及PC。这些家庭更有可能接受不复苏 (DNR) 命令、高级护理计划、临终关怀、计划的死亡地点以及让孩子在医院外死亡。尽管大多数家长 (86%) 同意医生有义务告知所有癌症患者有关 PC 的信息。 PC 转介似乎比家长希望的要晚。缺乏 PC 参与的主要原因是不提供 PC 或孩子突然死亡。家长的犹豫不决不应被视为参与 PC 的障碍。尽管家长对 PC 持不同态度，但家庭接受了 PC，希望尽早转诊，并认为提供 PC 是医生的义务。这些发现强调需要及时进行 PC 转诊、改善教育和提高 PC 服务意识，以加强 PC 在儿科肿瘤学中的整合。版权所有 © 2024 美国临终关怀和姑息医学学会。由爱思唯尔公司出版。保留所有权利。

Palliative care (PC) has shown significant growth in the US and is associated with improved patient and caregiver experiences. Nevertheless, there are concerns that PC is underutilized in pediatric oncology. Understanding parental attitudes towards PC is crucial to improving PC utilization.This study aimed to explore bereaved parent attitudes towards PC in pediatric oncology.This study used data from Alex's Lemonade Stand: My Childhood Cancer Bereavement Survey. The survey included questions regarding bereaved parents' attitudes towards PC.The survey included 72 bereaved families. Parents completed the survey a median of 11 years after their child's death. PC was involved in 71% of cases. These families were more likely to have do not resuscitate (DNR) orders, an advanced care plan, hospice care, a planned death location, and for their child to die outside the hospital. Although most parents (86%) agreed that it is a doctor's obligation to inform all patients with cancer about PC. PC referrals appeared to happen later than parents preferred. Lack of PC involvement was primarily due to PC not being offered or sudden death of the child.Parental hesitancy should not be viewed as a barrier to PC involvement. Although parents held mixed attitudes about PC, families accepted PC, desired earlier referrals, and believed it was a doctor's obligation to offer PC. These findings highlight the need for timely PC referrals, improved education, and increased awareness of PC services to enhance the integration of PC in pediatric oncology.Copyright © 2024 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.