公寓生活:乳房切除术后有色人种女性的故事。
Living Flat: Stories from Women of Color After Mastectomy.
发表日期:2024 Oct 15
作者:
Jasmine A Khubchandani, Sakinah C Suttiratana, Rosetta Washington, Dawn White-Bracey, Madhav Kc, Andrea Silber, Oluwadamilola M Fayanju, Paris D Butler, Alka Menon, Rachel A Greenup
来源:
ANNALS OF SURGICAL ONCOLOGY
摘要:
在接受乳腺癌乳房切除术后乳房重建方面仍然存在持续的种族和民族差异。然而,患者报告的结果和围绕公寓生活的宣传工作绝大多数都集中在白人女性身上。我们试图描述因乳腺癌乳房切除术后住在公寓里的有色人种女性的生活经历。我们的社区合作研究包括社会人口统计和健康调查问卷以及半结构化访谈。使用以跨学科方式设计的访谈指南,我们探讨了与乳房切除术后的文化和社区相关的主题。纳入年龄≥ 18 岁且因乳腺癌而接受乳房切除术但未进行乳房重建的女性。访谈由经过正式培训的社区研究人员进行,并通过视频会议虚拟进行、记录和转录。使用基于团队的综合(归纳和演绎)方法对 NVivo 上的数据进行分析。最终队列包括 20 名女性,其中 60% 为黑人,20% 为亚洲人,10% 为多种族,5% 为拉丁裔,5% 为拉丁裔。白色的。主要概念包括:(a) 癌症耻辱、(b) 乳房周围的隐私、(c) 通过共同经历寻求支持、(d) 为了生命/健康而牺牲乳房、(e) 灵性、(f) 患者的家庭角色和与乳房的关系,以及 (g) 社会期望。女性描述了癌症耻辱感和乳房周围隐私的交叉点,影响了对家族史的了解和癌症治疗期间的支持。在有色人种女性中,乳腺癌耻辱感和精神信仰是乳房切除而不进行乳房重建后生活质量的关键因素,这些领域通常不包括在当代患者报告的结果测量。多样化经验的代表对于实现公平至关重要。© 2024。外科肿瘤学会。
There remain persistent racial and ethnic disparities in the receipt of post-mastectomy breast reconstruction for breast cancer. Yet, patient-reported outcomes and advocacy efforts around living flat overwhelmingly have focused on white women. We sought to characterize the lived experiences among women of color living flat after mastectomy for breast cancer.Our community-partnered study included a sociodemographic and health questionnaire followed by semistructured interviews. Using an interview guide designed in an interdisciplinary manner, we explored themes related to culture and community after mastectomy. Women ≥ 18 years old who underwent mastectomy without reconstruction for breast cancer were included. Interviews were performed by formally trained community-based research fellows and conducted virtually over video conferencing, recorded, and transcribed. Data were analyzed on NVivo using an integrated (inductive and deductive) team-based approach.The final cohort included 20 women, 60% identified as Black, 20% as Asian, 10% as multiracial, 5% as Latina, and 5% as white. Key concepts included: (a) cancer stigma, (b) privacy around breasts, (c) finding support through shared experiences, (d) sacrifice of breast for life/health, (e) spirituality, (f) patients' familial roles and relationship to breast, and (g) societal expectations. Women described the intersection of cancer stigma and privacy around breasts influencing knowledge of family history and support during cancer treatment.Among women of color, breast cancer stigma and spirituality are key contributors to quality of life after mastectomy without breast reconstruction, domains not routinely included in contemporary patient-reported outcome measures. Representation of diverse experiences is critical to achieving equity.© 2024. Society of Surgical Oncology.